Thursday, July 26, 2012
intro to pump...
today was our intro to pump day for marlee. we have much information from kev's mom about the insulin pump and know that it is a much easier way to handle insulin so we have been moving as quickly as possible with the goal of getting marlee on the pump. levi has been pointing to this day on the calendar saying "pump". marlee came with us to the appointment. we talked through much of the information with our nurse and then she attached the pump to marlee. she showed us how to place the port in her and then how to attach it. for now it is empty. this is just a trial to see how her skin does with the adhesive and also how she does having it on her all day and nite. when she first got the needle put in she did great. a few seconds later she looked like she was going to start to cry and said she didn't want it on anymore. we then talked to her about how this is a practice one and her real one will be pink and sparkly or however she wants it to look. when we got home getting her down for a nap with it was a little hard at first. she came out crying saying how she didn't like it (i thought it was the whole thing) but she only wanted it to be pink... you gotta love her fashion sense:) she has never liked sticky things on her-especially in the ER. so, i hope she will start to have some understanding that having this will help us stop doing shots every time she eats something. so, after swimming and time for shower marlee wanted the port off again and naomi totally took her mind off it by talking about princesses and fairies and they played in the shower. in that time together naomi also talked to marle about how the pump works and how it will give her the insulin a little at a time (as naomi learned how it works from grandma). naomi just floored me tonite as to how much she loves and cares about marlee. it is one of those moments when i looked at naomi and was so thankful for the wonderful little girl she is. she knows how to comfort marlee and is a natural caretaker. so, we will do the pump but now until october or november as they want you to wait about 6 months after diagnosis. marlee also starts preschool and we don't want to many new things at once. so we will keep doing what we are doing and take each moment as it comes...
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